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| Headed to where all the lakes are. The mountains still had snow on them! |
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Grandma kayaking |
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| Lily & Caleb-before me and Katie's walk around Lake Mary. Our goal was to get them to take a nap and we were successful! |
Friday, July 30, 2010
Vacation-Day 2
Sunday was the only full day my parents and Jordan and Katie had up in Mammoth. So we decided to do some sight seeing and hang out at Lake Mary for the day.
Vacation-Day one
We left Saturday (8/17) morning for Mammoth. Katie & Jordan followed us up and our #1 stop was the Bass Pro Shop!
We needed to let the kids stretch their little leggies...also most importantly let the MEN walk around the gun and fishing department.
Emily already making herself cozy on the couch
Look what we found on the patio!
A path that started near the condo and went out into the woods and into other neighborhoods. This path soon become our daily walk.
The place we will call home for the next 5 days.
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| Grandma taking Caleb and her beer for a walk. |
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| Me...thrilled to finally be on vacation and so ready to eat dinner. |
Mammoth Vacation
The day before Mammoth I was spoiled with a new camera... I got the Canon 7D (body). Is it even possible to be IN LOVE with your camera? Here are some pics of the day before our Mammoth Vacation.
Thursday, July 8, 2010
Hallelujah
So we received the best news EVER this morning... Caleb's MRI was normal! Thank you God!! Here are two pictures of Caleb from the hospital yesterday.
Caleb was such a trooper! He even took a cat nap while we were waiting! We had to be at the hospital at 9:45am and his MRI was scheduled for 11am. They were running a little late and he didn’t get his MRI started till 12:30 (MRI’s take about an hour). He was so good and patient the entire time. When the nurse was wheeling him to the MRI room, he was sitting back in the hospital crib like he was king.... It was so cute. The hardest part was watching him be sedated and then having to leave him. He woke up fine from the anesthesia and we were out of the hospital around 2pm.
Tuesday, July 6, 2010
4th of July
For the 4th we stopped by the Hemmens to see baby Parker for a bit, then stopped by and saw baby Hailey. Then off for a BBQ at my parents. After we ate, Caleb was getting grouchy and burned out so we headed home. Emily stayed with my parents and they took her to see the fireworks.
What Epilepsy???
Just as we start to think that this is a thing from the past and we'd possibly be in the clear...Caleb has another seizure. It was Monday June 28th and we were at Costco with Kristen, Chase & Gigi. We just sat down to eat and I notice Caleb starting to act weird. I picked him up and tried to get him to stand on my legs and he can’t. It was almost like I had sat him in a chair and spun him around a million times and tried to get him to stand and act normal. This seizure was a little different than the other and definitely lasted longer…about 3min. Luckily for me Mission Hospital was literally street lights away. So we all rushed to the car and headed over to the ER. By the time we had arrived he had stopped seizuring and was starting to act normal. They got us back within 5 minutes of arriving and took his vitals. All normal. Then was the long wait to see the ER Doctor. We finally got out of the ER around 9:30pm. We talked with our Neurologist Dr on the phone and our plan was to schedule an appointment with him that week to discuss meds….MEDS??? WHAT???
So now it’s Wednesday 6/30 and we’re meeting with our Neurologist Dr. McIntosh. Josh and I went to this appointment pretty certain we were not going to start Caleb on Meds, that wasn’t an option we were ready for and knowing his EEG was normal we didn’t think our son had epilepsy. I had been frantically looking up anything and everything I could online, trying to find another reason why Caleb had seizures and/or an “episode”. Well after discussing what Caleb was doing during his last “episode”, our Dr looked at us and said Caleb has now had two unprovoked seizures which classifies him as having epilepsy. My heart sank. The Dr explained that right now we have 2 good things on our side.
1.Caleb’s EEG was normal
2. Caleb is learning and developing normal
So now we just need his MRI to be normal and there’s a 70% chance (our Dr thinks possibly higher) that Caleb will outgrow his Epilepsy. Caleb has Idiopathic Focal Epilepsy and Complex Partial Seizures.
We started him on his meds that night. After hearing that these little seizure that Caleb currently has are harmless, but when and if he has one that lasts longer than 20 minutes, those can cause brain damage. Our Dr ensured us that the medication is safe and will have little/to no side effects on him. We are starting him on it slowly and will gradually bring him up to the correct dosage in a month’s time. After hearing that seizures that last longer than 20 min can cause brain damage…I looked at Josh and said “what if he has one while we are sleeping and don’t know it?”. The Dr said if it was his own kid he would start her on the medication because he wouldn’t want to take the chance. He said we have a perfectly healthy and normal kid right now. It’s not worth taking a chance on not starting him on the medication and hoping his seizures don’t last long enough to cause brain damage. He said he would hate to have this conversation with us in the ICU and having to tell us our kid now has brain damage.
Caleb has been on the medication for almost a week, granted he’s only getting a ½ tab at night right now, but we have not noticed any changes. That is my biggest fear of having a medication change him or make him act or seem different. I’m being a paranoid mom and still semi in denial and I am constantly asking Josh if he seems okay, or is he doing things differently and Josh keeps ensuring me that he’s fine and acting normal. I just can’t help my mind, it’s going a million miles a minute and I just lay there at night listening to the monitor wondering and worrying if everything is alright. AGH!! I know it’s in God’s hands and he will take care of my little man.
Please keep our guy in your prayers, tomorrow is his MRI and I’m already freaking out about having him sedated. I’ll keep you all posted on the results.
So now it’s Wednesday 6/30 and we’re meeting with our Neurologist Dr. McIntosh. Josh and I went to this appointment pretty certain we were not going to start Caleb on Meds, that wasn’t an option we were ready for and knowing his EEG was normal we didn’t think our son had epilepsy. I had been frantically looking up anything and everything I could online, trying to find another reason why Caleb had seizures and/or an “episode”. Well after discussing what Caleb was doing during his last “episode”, our Dr looked at us and said Caleb has now had two unprovoked seizures which classifies him as having epilepsy. My heart sank. The Dr explained that right now we have 2 good things on our side.
1.Caleb’s EEG was normal
2. Caleb is learning and developing normal
So now we just need his MRI to be normal and there’s a 70% chance (our Dr thinks possibly higher) that Caleb will outgrow his Epilepsy. Caleb has Idiopathic Focal Epilepsy and Complex Partial Seizures.
We started him on his meds that night. After hearing that these little seizure that Caleb currently has are harmless, but when and if he has one that lasts longer than 20 minutes, those can cause brain damage. Our Dr ensured us that the medication is safe and will have little/to no side effects on him. We are starting him on it slowly and will gradually bring him up to the correct dosage in a month’s time. After hearing that seizures that last longer than 20 min can cause brain damage…I looked at Josh and said “what if he has one while we are sleeping and don’t know it?”. The Dr said if it was his own kid he would start her on the medication because he wouldn’t want to take the chance. He said we have a perfectly healthy and normal kid right now. It’s not worth taking a chance on not starting him on the medication and hoping his seizures don’t last long enough to cause brain damage. He said he would hate to have this conversation with us in the ICU and having to tell us our kid now has brain damage.
Caleb has been on the medication for almost a week, granted he’s only getting a ½ tab at night right now, but we have not noticed any changes. That is my biggest fear of having a medication change him or make him act or seem different. I’m being a paranoid mom and still semi in denial and I am constantly asking Josh if he seems okay, or is he doing things differently and Josh keeps ensuring me that he’s fine and acting normal. I just can’t help my mind, it’s going a million miles a minute and I just lay there at night listening to the monitor wondering and worrying if everything is alright. AGH!! I know it’s in God’s hands and he will take care of my little man.
Please keep our guy in your prayers, tomorrow is his MRI and I’m already freaking out about having him sedated. I’ll keep you all posted on the results.
Friday, July 2, 2010
Sweet baby Parker Hemmen
Welcome baby Parker Hemmen. He was born Thursday July 1st at 5:16pm, weighing 7lb 10oz and is 18in long. He is so perfect!! Congrats Kristen & Leon!!
I am so excited I get my baby fix from both Sam and Kristen! AND the best part is...I get to go home and sleep at night :)
Cho Choooooo
When we took Caleb to the Neurologist a few weeks ago they had a train table set up in the lobby and it was love at first site for him. So last weekend we bought the kids their own. Caleb plays with it as often as he can. The first night trying to separate him from his new found love to JUST eat dinner was quite challenging.
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